I wrote last week about our bump in the road, another seizure which came completely out of the blue and left in its wake quite a lot of pain and unease. This week I wanted to talk about what changes we have made due to this latest 'bump'.
First of all, and most importantly, we are giving the seizures the respect they deserve. To put it another way, we are not ignoring it, or pretending it never happened, because it did, which in theory, means it could happen again. I have only had three separate episodes of fitting so we have no real clue as to what are my causes. This is not a happy, or fun, state to be in; constantly having to be careful. We can be having a completely normal day; just sitting in our flat, I make one small sound, maybe just a yawn, and Amy comes running into the room in panic mode. I'm sure as our lives begin to fill up again this feeling will disperse but it will never completely disappear.
To try and prevent any more seizures from happening, we have put certain measures in place, which have come from a combination of medical advice, online research, and good old fashioned plain talking to other people with similar conditions as me, or who have been in similar predicaments.
Before I go any further, I must yet again point out the incredible amount of effort, research and hard work, my amazing girlfriend Amy has put in to help. Like me, she did not ask for this, and certainly does not deserve it, especially after everything she has done for me. I cannot apologise enough to her for all the disruption it has caused to her, and our life.
Every time she goes to work at Waitrose, on Monday, or Friday night, I try to push myself out of my comfort zone by walking up Cheltenham High Street, to the local shop, to buy her some flowers, to surprise her when she gets in from work and make her feel appreciated. I hope it has the desired effect.
I would not exactly say I walked around with an air of invincibility about me or anything like that, but, as I mentioned in a previous blog, I do feel as though my protective armour has been taken from me, and I feel, dare I say, fallible. The latest seizure was a big reminder of this.
Now, some of the following may just sound like the sort of thing you should be doing anyway to live a healthy lifestyle, but we don't know what is causing the seizures, all we can do is make guesses, or assumptions.
So first of all, we try and make sure I stay hydrated by drinking plenty of fluids, unfortunately as a consequence, I now know what it feels like to have a bladder as weak as Amy, or my sister and mother, as my visits to the toilet have increased as a result, without trying to give you too much information!
Secondly, we try and make sure I have proper meals, which are filled with plenty of healthy ingredients like fruit and vegetables. So salads have become a regular fixture in our flat now. We have become much more organised; making lunches the night before so when I get home, everything is ready to go.
To go alongside our healthy menu, we have also tried to ensure I get plenty of rest so we try not to do too much in our days, or overdo it, so unfortunately I have not been to gym since it happened, probably mostly through knocked confidence, but I hope to return as fitness is/was a huge part of me. It is hard going to accept, since my injury, my new limitations.
We are still working on the balance of being aware of my risks but pushing on in my recovery.